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Living and Parenting with a Rare
I was born with a rare, genetic disorder called Oto Palatal Digital Syndrome(OPD). This condition affects less than 1 out of every 100,000 people. I can offer a unique perspective on living with, and also parenting two children with this condition. OPD is so rare that I had no idea that there was even a name for it until I was 34 when my daughter was born and diagnosed with it at 2 days old.
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